Black Pearl Rosé 2011 vintage, NOW ON SALE!!!!

MEG - OUR LITTLE PEARL NEEDS YOU HELP.
Meg is 4 years old and has spastic Quadreplegic Cerebal Palsy.
We are launching the second release of Meg's rosé wine called Black Pearl.
The idea for this fundraising effort came from winemaker & family friend Eleana Anderson of Mayford Wines (www.mayfordwines.com) who has lovingly donated her time and resources.
This wine is made from donated grapes grown in the Alpine Valleys by Mayford & Michelini wines, (www.micheliniwines.com.au) and bottled with assistance from Ringer Reef Wines (www.ringerreef.com.au) and picked, bottled, labeled and packed by volunteers.
A big, huge thank you to all those who gave their time and assistance.
The rosé was certainly made with love, you can taste it in every bottle!
The funds raised from the sale of this wine will be used for Megs future needs,
including this year the purchase of her first wheelchair.
For sale at Alpine Visitor Centres, in Bright, Mt Beauty & Myrtleford, & Food, Wine, Friends in Bright or print the order form below and we will deliver! Please help us to help Meg. For wine enquiries please email Kate - casleyke@bigpond.com. Enjoy!

Thursday, July 22, 2010

The Call is out for Team Meg Members

Who’s looking for a great reason to get fit? We are putting the call out for team Meg in the Melbourne marathon this year! The date is 10th October and there are a number of different walks / runs you can do depending on your fitness level!

CPEC - Cerebral Palsy Education Centre is the main recipient of the fundraising from the marathon and this is where Meg gets all her therapy. It is an amazing facility offering such a wonderful hope for our girl and we need to get behind the fundraising efforts as there is a short fall of approx $12’000.00 per year, per child that attends the centre and is covered by fundraising efforts done by the centre, aiding all families who are not asked to cover the short fall themselves.

So the call is out! 3 months to train up! Please email me and let me know if you would like to be part of “Team Meg” at the Melbourne Marathon!
casleyke@bigpond.com

Looking forward to hearing from you all!

Kate, Meg n Tom
xxx


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Monday, July 12, 2010

Meg - 3 + months on

Well it's been a while since I have updated Meg's blog. We have just finished school holidays and we begin our weekly trips to Melbourne tomorrow.
Meg has been extreemly well this winter, with only a sniffle early last month. This seems a common theme - I have spoken to a number of parents who's kids have undergone Stem Cell therapy. Immune systems seem to be boosted by the therapy with many parents stating that since S/C therapy they have not had a winter with frequent trips to hospital due to the various colds / flu / pneumonia. One parent has a 13 yo son - this is the first winter they have not had to take him to hospital.

All the gains we have seen since Meg's stem cell therapy have continued to advance in the last 3 months or so.
She is now making much more eye contact with us and the people around her.
Her communication skills are also improving with her head nodding and shaking (Yes / No) is very clear and we use her communication book to give her some say in what happens in her life.
Her hands remain less tight and she is using her hands a little more.

Another change which we had not mentioned previously was Megs leg length. Meg has for some time had quite a signifigant difference in her leg length, cause by the tightness in her abductor muscles pulling her left hip up making her left leg seem shorter than her right. Since the stem cell therapy and continuing Bowen Therapy her leg length has equalized.

We are due for another hip X-ray next month with the orthopaedic surgeon wanting to operate on Meg, our fingers are crossed that this may make a difference and Meg will not require surgery at this stage.

Other differences noticed,
- Meg holds her self up better - more tone in her trunk & is using her hands to support herself off your body when carrying.
- she is making many more noises and responding to games played and pretend play with noises.

On a sad note Meg's dad and I have separated.
It is a big journey for anyone having a disabled child - it is a steep learning curve and changes you irrevocably, unfortunately this has an enormous impact on relationships and from what I have read only 30% of relationships survive the ordeal.
I hope Jason will remain a big part of Meg's life and continue to offer her the support she needs.

Meg, Tom & I would like to thank our dear friends for your support over this emotional time, the people who have dropped over a few meals and Bev Miller for organising a donation of firewood for us to keep warm this winter, it is all very much appreciated. Even just the few who've dropped in for a cuppa and a chat, it means alot, thanks so much.

Kate





To Donate to MegAid Bendigo BankMegAid TrustBSB 633000Acct 137281846