We went on the Family camp at Lake Hume Resort with the wonderful team from Cooinda family support services last weekend. http://www.cooinda.org.au/ Want to send out a huge thanks to all the team there and all the people who volunteered to assist the families, the therapists who gave massages, mani/pedi's reiki etc etc etc the volunteers who fed us and all the local businesses who donated produce to do so. Needless to say the kids had a BLAST - A picture tells a thousand words -
Wednesday, March 30, 2011
Friday, March 18, 2011
Stem Cells one year on
Hi all, Just a quick note to fill you in on how Meg is going a year after treatment from stem cell therapy.
The biggest change we have noted is in her immune system. One year after treatment Meg has had nothing more than a slightly runny nose for a day or 2, Last week she had a slight temp and a sore ear, it lasted no more than 2 days. Amazing feat for a 3 year old who attends childcare 1 day a week and 2 days of therapy at C.P.E.C as well as a weekly swim in a public swimming pool..
It may not seem much to the scientists or the medical profession, to have had a neuroendoscopic stem cell transplant and the main result is a healthier child. However in Meg's life this is HUGE! It means we are not in and out of hospital, we are not on endless supplies of antibiotics, we can go every week to therapy - never missing a day through illness!! We can continue with all our many and varied activities all designed to give Meg the best chance to be the best she can be!
Her eye contact has continued to be fantastic also which Will hold her in good stead as she gets older and needs to be a part of the world and community around her. It is hard to imagine but we all do it, If a person is not looking at you when your speaking to you and doesn't or cant respond - even with a smile - we assume that they are not listening. It certainly isn't the case with people with cerebral palsy. The fact that Meg can look at people when they talk to her will help her immensely in her life and allow her to have more social contact.
No time for much more now but will try to add more detail to the update on the weekend
To Donate to MegAid Bendigo BankMegAid TrustBSB 633000Acct 137281846
The biggest change we have noted is in her immune system. One year after treatment Meg has had nothing more than a slightly runny nose for a day or 2, Last week she had a slight temp and a sore ear, it lasted no more than 2 days. Amazing feat for a 3 year old who attends childcare 1 day a week and 2 days of therapy at C.P.E.C as well as a weekly swim in a public swimming pool..
It may not seem much to the scientists or the medical profession, to have had a neuroendoscopic stem cell transplant and the main result is a healthier child. However in Meg's life this is HUGE! It means we are not in and out of hospital, we are not on endless supplies of antibiotics, we can go every week to therapy - never missing a day through illness!! We can continue with all our many and varied activities all designed to give Meg the best chance to be the best she can be!
Her eye contact has continued to be fantastic also which Will hold her in good stead as she gets older and needs to be a part of the world and community around her. It is hard to imagine but we all do it, If a person is not looking at you when your speaking to you and doesn't or cant respond - even with a smile - we assume that they are not listening. It certainly isn't the case with people with cerebral palsy. The fact that Meg can look at people when they talk to her will help her immensely in her life and allow her to have more social contact.
No time for much more now but will try to add more detail to the update on the weekend
To Donate to MegAid Bendigo BankMegAid TrustBSB 633000Acct 137281846
Next years vintage of Black Pearl on its way
Anyone with a free morning????? Grape picking starts today for next years vintage of Black Pearl Rose. 9am at Dalboscos Vineyard just up the Buckland valley Rd. Call El Anderson for details. The more the merrier.... and a glass or 2 of Black Pearl when we've finished.
Thanks for your support. Kate, Tom & Meg
To Donate to MegAid Bendigo BankMegAid TrustBSB 633000Acct 137281846
Thanks for your support. Kate, Tom & Meg
To Donate to MegAid Bendigo BankMegAid TrustBSB 633000Acct 137281846
Subscribe to:
Posts (Atom)