To Donate to MegAid Bendigo BankMegAid TrustBSB 633000Acct 137281846
Thursday, November 18, 2010
Black Pearl Rosé - Meg's wine to be launched this month
To Donate to MegAid Bendigo BankMegAid TrustBSB 633000Acct 137281846
Thanks to everyone who supported Team Meg in the Melbourne Marathon
Thanks to everyone who supported Team Meg in the Melbourne Marathon. We raised close to $2000 for C.P.E.C .
We realize that everyone is putting their hand out these days asking for support for this or that.
So with this in mind we appreciate every one's support that much more.
So with this in mind we appreciate every one's support that much more.
Meg, mum, Grandma, Uncle Sam & Great Auntie Robyn did the 4km walk - we came in 2nd last with nappy changes, lunch and mum carrying Meg nearly 1/2 the way! But how exciting to walk on to the MCG and cross the finishing line. It was certainly a great experience.
Big brother Tom and Auntie Anna completed the 5.7km run, Tom leaving Auntie for dead & doing it in 30 mins & 30 secs, he is so proud of his medal and this great Pic! Now Tom wants to compete every year and do the 10km run next year! Grandpa Peter did an amazing job - doing both the 10km run & the 5.7 km run.
Thanks to all the participants who came down from Bright & the Alpine Shire and competed in the 4km walk, the 5.7 km run, the 10km run & the half marathon! What an amazing show of support for Meg and our efforts to give her the absolute best start in life!
Thanks everyone - here is looking forward to next year!
If I put it in the Blog will any of you hold me to it???
Next year I am going to try to complete the 5.7 km run!!!!! If any of you know me and how unfit I am - this will be a pretty big achievement!
Best start training now! Anyone want to commit with me? I will need plenty of training partners to keep me motivated! Come on everyone ............
Best start training now! Anyone want to commit with me? I will need plenty of training partners to keep me motivated! Come on everyone ............
To Donate to MegAid Bendigo BankMegAid TrustBSB 633000Acct 137281846
Things are hotting up for summer
Hi everyone, It's been a while since we have given you all an update on whats been happening.
This year has gone so quickly with our trip to Europe in March, intensive therapy sessions every week at CPEC in Melbourne, Meg is swimming once or twice a week which she loves. Plus our daily exercise/therapy routine which takes up most of our day.
So we have little time to update our Blog.
Meg has learnt to blow bubbles in the pool and is now holding her breath when we put her under the water. This has been a great thing for her eating and drinking as she is learning the art of keeping her mouth closed and breathing through her nose.
Meg has had a great winter with only a few sniffles and one cough which she handled very well with a small dose of antibiotics, her health is excellent and her cheeks rosy and plump with the brightest blue eyes you have ever seen. They have the cheekiest sparkle in them when she is being naughty or cheeky.
We have had a great 6 months with her weight finally going over the 11kg mark it is just shy of one year since we weaned her from her tube feeds, she still has her PEG (feeding button in her tummy) as it's quite handy to give her foul tasting medicines and if her fluid intake is a little down we can give her some extra while she sleeps. The PEG is not doing any harm and really has given us the best of both worlds with keeping Meg as healthy as we can. We will consider removing it once she consistently is drinking 500mls of fluid a day.
Meg's eating is outstanding, and she has quite an appetite these days - she is basically eating everything we eat - just pureed, she is even having the odd honey or vegemite sandwich which she enjoys but is very slow - so we keep up with the purees. Her absolute favorite thing is Mini magnums - which I try to limit to one every second day.
Meg has had difficulty this year tolerating her therapy and we have been working hard with the team at CPEC to overcome this with help from the child Psychologist . Despite our best efforts her progress remains slow. We are trying many different approaches to make her more comfortable in her therapy positions and many many adjustments to her orthotics etc.
The main difference we have seen since her stem cell therapy has been her ability to facial focus, I talked about this being one of the first things we noticed after her treatment. Meg now often stares lovingly into my eyes - which of course makes me cry every time!
The relaxation in the spasticity in her hands has also continued but not improved much.
Our next big hurdle is to get Meg actively stepping and even possibly walking in a walker. This is extremely difficult for her as she has what is known as fluctuating tone - so she goes from being extremely floppy to extremely stiff and she has to work extra hard to find the middle ground. It is so important for us to get Meg weight bearing as her left hip is more than 50% out and needs the weight bearing to form correctly, we are looking at surgery early in the new year to help with this in conjunction with Botox and Phenel to relieve the spacticity in her muscles.
That's about all I have time for today, please keep in touch.
Have more exciting fundraising news coming up!
Kate Meg & Tom
xx
To Donate to MegAid Bendigo BankMegAid TrustBSB 633000Acct 137281846
This year has gone so quickly with our trip to Europe in March, intensive therapy sessions every week at CPEC in Melbourne, Meg is swimming once or twice a week which she loves. Plus our daily exercise/therapy routine which takes up most of our day.
So we have little time to update our Blog.
Meg has learnt to blow bubbles in the pool and is now holding her breath when we put her under the water. This has been a great thing for her eating and drinking as she is learning the art of keeping her mouth closed and breathing through her nose.
Meg has had a great winter with only a few sniffles and one cough which she handled very well with a small dose of antibiotics, her health is excellent and her cheeks rosy and plump with the brightest blue eyes you have ever seen. They have the cheekiest sparkle in them when she is being naughty or cheeky.
We have had a great 6 months with her weight finally going over the 11kg mark it is just shy of one year since we weaned her from her tube feeds, she still has her PEG (feeding button in her tummy) as it's quite handy to give her foul tasting medicines and if her fluid intake is a little down we can give her some extra while she sleeps. The PEG is not doing any harm and really has given us the best of both worlds with keeping Meg as healthy as we can. We will consider removing it once she consistently is drinking 500mls of fluid a day.
Meg's eating is outstanding, and she has quite an appetite these days - she is basically eating everything we eat - just pureed, she is even having the odd honey or vegemite sandwich which she enjoys but is very slow - so we keep up with the purees. Her absolute favorite thing is Mini magnums - which I try to limit to one every second day.
Meg has had difficulty this year tolerating her therapy and we have been working hard with the team at CPEC to overcome this with help from the child Psychologist . Despite our best efforts her progress remains slow. We are trying many different approaches to make her more comfortable in her therapy positions and many many adjustments to her orthotics etc.
The main difference we have seen since her stem cell therapy has been her ability to facial focus, I talked about this being one of the first things we noticed after her treatment. Meg now often stares lovingly into my eyes - which of course makes me cry every time!
The relaxation in the spasticity in her hands has also continued but not improved much.
Our next big hurdle is to get Meg actively stepping and even possibly walking in a walker. This is extremely difficult for her as she has what is known as fluctuating tone - so she goes from being extremely floppy to extremely stiff and she has to work extra hard to find the middle ground. It is so important for us to get Meg weight bearing as her left hip is more than 50% out and needs the weight bearing to form correctly, we are looking at surgery early in the new year to help with this in conjunction with Botox and Phenel to relieve the spacticity in her muscles.
That's about all I have time for today, please keep in touch.
Have more exciting fundraising news coming up!
Kate Meg & Tom
xx
To Donate to MegAid Bendigo BankMegAid TrustBSB 633000Acct 137281846
Wednesday, August 25, 2010
Walk don't run!
Kate Casley For those who received my Melb Marathon fundrasing email yesterday - I'm not running the marathon, Meg & I will be doing the 4km walk! - Sorry to disapoint! - but no matter - sponsor us anyway! www.everydayheros.com.au/teammeg
http://www.everydayheros.com.au/teammeg
www.everydayheros.com.au
To Donate to MegAid Bendigo BankMegAid TrustBSB 633000Acct 137281846
http://www.everydayheros.com.au/teammeg
www.everydayheros.com.au
To Donate to MegAid Bendigo BankMegAid TrustBSB 633000Acct 137281846
Tuesday, August 24, 2010
Team Meg well on the way to target
Thanks to those who donated today to Team meg! we have already raised $240 please go to the link http://www.everydayhero.com.au/team_meg to donate towards the wonderful cause CPEC.
I am trying to raise as much money as I can by entering in the 2010 St George Melbourne Marathon. Please click on this link to visit my fundraising page to find out all about it. Please dig deep to sponsor me. It only takes a few seconds.
Meg & I travel to CPEC (Cerebral Palsy Education Centre) every week for Meg's therapy! It's a 5 hour journey door to door from Bright in NE Victoria and we stay away from home for 3 nights a week so Meg can spend 2 mornings at CPEC in their world class specialist Cerebral Palsy clinic.
It really is the best in Australia! CPEC have government funding to the tune of $5000 per child that attends the clinic. This leaves a shortfall of $11,000.00 per child. It is through fundraising activities such as the Melbourne Marathon that mean that none of the families that attend the centre have to come up with $11,000 each year, when their lives have already been turned upside down with the news that their child has Cerebral Palsy and the implications financial & emotional that come with caring for a disabled child. Your support is invaluable and we hope that you will give generously.
Please spread the word and send this to as many people as possible.
Thank you very much.
You can visit my fundraising page at http://www.everydayhero.com.au/team_meg
Couple of facts –
· While CPEC are the official charity of the Melbourne Marathon, they do not receive a percentage of the runners/walkers registration fee. Our principal money from the event comes from supporters like you who raise money for us.
· This year it will cost nearly $1,700,000 to run our children’s education services. We only receive around $450,000 from the State Government. The rest of the money comes from our own fundraising and donations. The final short fall has to be met by parent fees.
Again thank you for making the effort to raise money to support nearly 100 kids who attend our world renowned education programs. It is your support that will ensure that we can continue to afford the programs and services for our babies and school aged children.
I am trying to raise as much money as I can by entering in the 2010 St George Melbourne Marathon. Please click on this link to visit my fundraising page to find out all about it. Please dig deep to sponsor me. It only takes a few seconds.
Meg & I travel to CPEC (Cerebral Palsy Education Centre) every week for Meg's therapy! It's a 5 hour journey door to door from Bright in NE Victoria and we stay away from home for 3 nights a week so Meg can spend 2 mornings at CPEC in their world class specialist Cerebral Palsy clinic.
It really is the best in Australia! CPEC have government funding to the tune of $5000 per child that attends the clinic. This leaves a shortfall of $11,000.00 per child. It is through fundraising activities such as the Melbourne Marathon that mean that none of the families that attend the centre have to come up with $11,000 each year, when their lives have already been turned upside down with the news that their child has Cerebral Palsy and the implications financial & emotional that come with caring for a disabled child. Your support is invaluable and we hope that you will give generously.
Please spread the word and send this to as many people as possible.
Thank you very much.
You can visit my fundraising page at http://www.everydayhero.com.au/team_meg
Couple of facts –
· While CPEC are the official charity of the Melbourne Marathon, they do not receive a percentage of the runners/walkers registration fee. Our principal money from the event comes from supporters like you who raise money for us.
· This year it will cost nearly $1,700,000 to run our children’s education services. We only receive around $450,000 from the State Government. The rest of the money comes from our own fundraising and donations. The final short fall has to be met by parent fees.
Again thank you for making the effort to raise money to support nearly 100 kids who attend our world renowned education programs. It is your support that will ensure that we can continue to afford the programs and services for our babies and school aged children.
Thanks Herald Sun
Thanks to the Herald Sun article a couple of weeks ago, we have had another $70 donated through the Meg Aid trust account. Thanks so much to the 2 anonymous donors for your support.
Heres a couple of recent pics taken by the fab photographer from Herald sun Jay Town - thanks Jay for forwarding them
Kate n Meg
To Donate to MegAid Bendigo BankMegAid TrustBSB 633000Acct 137281846
Something to share
Who in my situation would not ask WHY ME?
This is a lovely piece I thought I'd share!
To Donate to MegAid Bendigo BankMegAid TrustBSB 633000Acct 137281846
Most women become mothers by accident, some by choice, a few by social pressures, and a couple by habit. This year, nearly 100,000 women will become mothers of handicapped children. Did you ever wonder how mothers of handicapped children are chosen? Somehow I visualize God hovering over Earth selecting his instruments for propagation with great care and deliberation. As he observes, he instructs his angels to make notes in a giant ledger.
"Armstrong, Beth; son; patron saint, Matthew.
"Forrest, Marjorie; daughter; patron saint, Cecelia.
"Rudledge, Carrie; twins; patron saint.... give her Gerard. He's used to profanity."
Finally, he passes a name to an angel and smiles, "Give her a handicapped child."
The angel is curious. "Why this one, God? She's so happy."
"Exactly," smiles God. "Could I give a handicapped child a mother who does not know laughter? That would be cruel."
"But has she patience?" asks the angel.
"I don't want her to have too much patience or she will drown in a sea of self-pity and despair. Once the shock and resentment wears off, she'll handle it. I watched her today. She has that feeling of self and independance. She'll have to teach the child to live in her world and that's not going to be easy."
"But, Lord, I don't think she even believes in you."
God smiles. "No matter. I can fix that. This one is perfect. She has just enough selfishness."
The angel gasps, "Selfishness? Is that a virtue?"
God nods. "If she can't seperate herself from the child occasionally, she'll never survive. Yes, there is a woman I will bless with a child less then perfect. She doesn't realize it yet, but she is to be envied. She will never take for granted a 'spoken word.' She will never consider a 'step' ordinary. When her child says 'Momma' for the first time, she will be present at a miracle and know it! When she describes a tree or a sunset to her blind child, she will see it as few people ever see my creations.
"I will permit her to see clearly the things I see --- ignorance, cruelty, prejudice --- and allow her to rise above them. She will never be alone. I will be at her side every minute of every day of her life because she is doing my work as surely as she is here by my side."
"And what about her patron saint?" asks the angel, his pen poised in midair.
God smiles. "A mirror will suffice."
This is a lovely piece I thought I'd share!
To Donate to MegAid Bendigo BankMegAid TrustBSB 633000Acct 137281846
Most women become mothers by accident, some by choice, a few by social pressures, and a couple by habit. This year, nearly 100,000 women will become mothers of handicapped children. Did you ever wonder how mothers of handicapped children are chosen? Somehow I visualize God hovering over Earth selecting his instruments for propagation with great care and deliberation. As he observes, he instructs his angels to make notes in a giant ledger.
"Armstrong, Beth; son; patron saint, Matthew.
"Forrest, Marjorie; daughter; patron saint, Cecelia.
"Rudledge, Carrie; twins; patron saint.... give her Gerard. He's used to profanity."
Finally, he passes a name to an angel and smiles, "Give her a handicapped child."
The angel is curious. "Why this one, God? She's so happy."
"Exactly," smiles God. "Could I give a handicapped child a mother who does not know laughter? That would be cruel."
"But has she patience?" asks the angel.
"I don't want her to have too much patience or she will drown in a sea of self-pity and despair. Once the shock and resentment wears off, she'll handle it. I watched her today. She has that feeling of self and independance. She'll have to teach the child to live in her world and that's not going to be easy."
"But, Lord, I don't think she even believes in you."
God smiles. "No matter. I can fix that. This one is perfect. She has just enough selfishness."
The angel gasps, "Selfishness? Is that a virtue?"
God nods. "If she can't seperate herself from the child occasionally, she'll never survive. Yes, there is a woman I will bless with a child less then perfect. She doesn't realize it yet, but she is to be envied. She will never take for granted a 'spoken word.' She will never consider a 'step' ordinary. When her child says 'Momma' for the first time, she will be present at a miracle and know it! When she describes a tree or a sunset to her blind child, she will see it as few people ever see my creations.
"I will permit her to see clearly the things I see --- ignorance, cruelty, prejudice --- and allow her to rise above them. She will never be alone. I will be at her side every minute of every day of her life because she is doing my work as surely as she is here by my side."
"And what about her patron saint?" asks the angel, his pen poised in midair.
God smiles. "A mirror will suffice."
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