Well it just over 24 hrs since Megs neuroendoscopy, so far so good. No changes to be noticed so far - but it is early days yet. I think the only things we have noticed are in our own minds - wishfull thinking, we are just so surprised at how well she is doing. Really the only BAD bit was when she first woke from surgery, she really hit the roof for an hour or so - but we have seen this with Meg before after comming out from a general anasthetic, it is called emergence delerium so we had thought this may happen anyway and were prepared. After a short sleep she woke up smiling and happy and sat up on mum or dads lap and watched DVD's all afternoon - grazing on food for most of the day. We are lucky she has not been sick at all as yet and still has quite a good appetite.
We had a broken nights sleep last night - Meg slept soundly from 6pm till about 1am - then was awake ane ready to play til 4am - no number of lullabies would get her back to sleep. This again is pretty normal behaviour according to Meg's neurosurgeon Dr Tamascke. So all in all she is a textbook case, there was no bleeding on the brain during surgery and the Dr was extreemly pleased with how things went. She introduced over 8 million stem cells into Megs brain liquor spaces, This was also a really positive thing, Each person has an indervidual number of stem cells extracted the norm is between 2 - 5 million - but Meg had an unusually large number so this will all work to her favor.
So now is just a waiting game, we are here at the Xcell centre for another night or 2 depending on when the Dr's are happy for us to leave. And the rest is up to Meg - will it or won't it work?? Fingers crossed from our end it is a bit of a lottery but we have put our best in and thats is all we can do now.
We continue with Meg's therapy as best we can, we have been lucky with getting equipment over here and have a few things on loan, although it's been very hard to find the time.
So today e have our first spring weather day and as Meg has refused to have her afternoon sleep twice now we will take in some fresh air with a walk along the Rhine.
will keep you all updated
all the best
Kate
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