At the time of birth the doctors believed Meg suffered some oxygen deprivation during delivery.
Meg was totally flat on delivery, not breathing and with a very low heart rate requiring resuscitation. After 1 night in intensive care it was noticed that she was having some seizures and decided to transport her to Royal Women's Hospital in Melbourne.Her first airplane ride at less than 24 hours old!
The days just fly by here (12 now) - with visits to the Royal Women's Hospital day and night every 3 hours or so and with the normal day to day survival requirements (ie sleep) we don't seem to get much time to get on the computer and put an email together.
Meg is 13 days old today and seems to be doing well. She still isn't feeding which is the major hurdle at the moment but with the Hospital policies it is making it harder to give her the best chance to find her feet here.
Megs MRI and EEG has shown some brain damage but the prognosis was reasonably positive with it being thought that she would only suffer losses with her fine motor skills ie be a little more clumsy than other kids.
All other areas of the brain looked normal.Today is D day as to whether the neurologist wants to do further tests ie another MRI and EEG (brain scan) - not sure we want to know the results of that one should they be worse than their initial findings - so Mum and Dad Very anxious at the moment.
We hope to be back in Wodonga by the end of this week - if further tests are not required we may be delayed somewhat ......We are both experiencing Melbourneitis in a big way now and cant wait to get home....
Dear Casley Family,
ReplyDeleteMy name is Sarah Davis. I have four children my baby twin daughters were born at 29wks, they were born strong and healthy apart from a virus they had contracted in utero. I had a cold sore when I was pregnant this had transferred to my Twins. Baby Aliyah was born with scaring down her arm this was the first indication we got that there was a problem. It was later discovered that Turandot had encephalitis as a result of the virus and the Herpes Simplex Virus had begun to munch away at her brain. This in turn caused vision problems for Turandot and is considered to be legally blind. Her diagnosis, Spastic quadriplegia. The girls were born in November 2007. My e-mail address is sarahdeboo@msn.com I would really like to be in touch with you it seems we have two special little girls in common. Kind regards Sarah from Essendon, Melbourne (Originally UK)
PS I have tried to contact you a number of different ways, I hope you don’t think I'm hounding you :-)