Stem Cell Therapy
After much research into Adult Stem Cell Therapy (quite different to embryonic stem cell therapy) we are looking into going to the XCell-Centre in Germany some time in February 2010. The XCell-Centre will not begin treatment on Meg until she is at least 2 years old.
Should Meg's first stem cell treatment be effective we may require further trips to Germany approximately six months apart.
The total cost estimation for one trip is around AU$30,000 for treatment and flights, then there is accommodation and transport within Germany.
Link: http://www.xcell-center.com
Tube Feeding
Meg is almost 100% fed by gastric tube so we are also looking into a tube weaning course in Graz, Austria. There is nothing like this available in Australia.
The method used in Graz is world renouned and has a very high success rate, it involves a three week stay at the institute and we hope it will help Meg learn how to eat orally. Even a 10% improvement would be beneficial to her. The total cost of this is around AUD$5000 per week for the treatment alone.
Link http://www.notube.at
Equipment
Other special equipment requirements as Megs grows are:
Standing frame - required now approximately $5000
Feeding Chair 3 - 5 years - approximately $5000
Stroller 3 - 5 years - approximately $8000
AFO's (individualy made plastic boots to keep Megs feet straight)- required now approximately $900
Equipment
Other special equipment requirements as Megs grows are:
Standing frame - required now approximately $5000
Feeding Chair 3 - 5 years - approximately $5000
Stroller 3 - 5 years - approximately $8000
AFO's (individualy made plastic boots to keep Megs feet straight)- required now approximately $900
Support socks (To keep Meg's toes from crossing) 3 - 5 years - approximately $900 each
Second Skin - Pressure suit - 2 yo- approximately $1500 - $2000 (Meg will require a new suit each year)
Leg & Arm wrapps - a new set each year - approximately $150
All this equipment will help her have a more normal lifestyle and allow her to mix with other children her own age.
We can't really put a total figure on all this equipment but it will be somewhere between $20,000 - $60,000. As Meg grows she will need new equipment so costs will be ongoing.
Leg & Arm wrapps - a new set each year - approximately $150
All this equipment will help her have a more normal lifestyle and allow her to mix with other children her own age.
We can't really put a total figure on all this equipment but it will be somewhere between $20,000 - $60,000. As Meg grows she will need new equipment so costs will be ongoing.
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