She had gone 10 days with no peg feeds (only some water) and the team were astounded that after such a short time her weight increased - it was only 35g increase - but it doesnt matter - what it means is that she is actually able to eat enough to sustain herself.
I can tell you it has been a long hard Road - I always beleived that Meg could eat orally but was constantly told by "the experts" that her swallow MAY be unsafe and we had to be very cautious and that the oral motor dysfunction she displayed would prevent her from eating enough to sustain herself. I really had to battle to get the opportunity to have the support of the RCH Melbourne to try to wean Meg in a safe and supported manner, ensuring that she did not become dehydrated or loose too much weight too fast - also to be able to stay somewhere where all I had to do was concentrate on Meg and her eating - I dont think I could have done this at home - it is a really hard emotional ride - But here we are - Meg's favorite food is spaghetti bolognaise - just like her Big brother Tom - and to be honest I'm pretty partial to it also.
So I guess the moral of this story is - follow your instincts mums - you will be right!
Bendigo Bank
MegAid Trust
BSB 633000
Acct 137281846
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