Hi all - I have had a few people contact me lately through the blog as they too are heading to Germany with their loved ones to try Stem Cell therapy.
We have been lucky enough to actually meet some parents of CP kids who have been and tried the procedure at the XCell center which has given us much needed reassurance and alot of very useful information on the clinic and side effects etc.
So in response to this I have started up a ning group to try and connect all of us parents going through the same thing - www.stemcellroundtable.ning.com
I think it is best that we don't each of us individually try to reinvent the wheel. Researching this sort of procedure is extremely time consuming and confusing, we all go off in our own directions and get Dr's advice and talk to all sorts of different people, I have set this group up to try and bring all that knowledge, information and experience together to help others with their journey.
I hope you might have a look at the group and pass it on to anyone you think might gain something out of it or have something useful to share.
Thanks again everyone.
Kate
New To Donate to MegAid
Bendigo Bank
MegAid Trust
BSB 633000
Acct 137281846
Friday, February 12, 2010
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