Small changes

Hi all - well sorry to have been so quiet the last few days. We have been on the move and just never enough time to write and we have had very sketchy Internet access. Travelling with children - let alone special needs children is certainly and experience especially in a foreign country- we are all totally exhausted - we will all need a holiday from our holiday I think!
Today we landed in England, a slight change of plans, yesterday we were headed to Switzerland - things were going terribly wrong and Meg was not coping well so we decided we should head to an English speaking country for a bit and catch up with some of Jason's relatives.
So I know I am holding you all in suspense about these changes we have noticed with Meg - we really did not want to just spout on about changes that we so desperately wanted to see - anyway we are pretty confident now that we are definitely seeing some changes, - nothing major mind you but the spasticity in her hands has definitely decreased, one of the exercises we try to do with Meg daily is to hold her hand out flat with palm facing up - usually we would have to prise her fingers out and hold them quite firmly to be able to play the round and round the garden, well now constantly Meg can open and hold her own fingers out herself - this is quite a difference. In the all over scheme of things this is not a big change but we hope, as we have said all along that, only one small change may then grow as Meg develops new skills that she never would have been able to achieve, had she not had the stem cell therapy.

Meg is also making new sounds and her eye sight has improved. In all my wishes as a mother apart from having Meg eating and enjoying real food, the other wish was for her to look at my face, Meg has always had difficulty with this - I am not sure why but she has never stared at me intently, the other morning when I was feeding her breakfast and we were playing mum mum sound games, Meg just stared at me for about 30 seconds, into my eyes and at my mouth making the sounds and smiling and laughing. It was amazing to say the least, 30 seconds doesn't sound like much but believe me when your child has never really looked at you before 30 seconds was an eternity. She has not done it again since but I only hope that this will be the other big change in her, such a lovely way to interact and something I have missed.
Meg is also spending much more time on her stomach, something that she would have extreme difficulty in doing prior to the stem cells, as the tightness in her shoulders
would cause her to tip over, and it was uncomfortable for her so she would cry alot. Like I said she is spending more time happily on her stomach now and doing better with creeping and moving on her stomach also.
So - so far so good I guess, we would love to see more significant changes but It is difficult to continue with Meg's therapy when we are travelling - we are looking forward to getting home now and working with Meg more intently to see if we can turn some of these changes into real benefits for Meg and her future.

Thanks to all those who have emailed, sorry I just don't have time to reply individually but hopefully you will all get this news via the Blog.

love to all, we are back in OZ Easter Monday.

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