To all those waiting in antisipation for news of how things went today, I am happy to report that all went extreemly well. Meg and Jason went into the theatre - He said she was a good little girl while they put the IV line in and only grizzled when they put the mask on her face.
The XCell centre is quite a facility the hospital it is based in is an old one but the floors that the XCell centre occupy have been completely refurbished and provide an extreemly modern and up to date facility.
We met another Aussie family in the waiting room with their 13yo CP son Michael who will undergo the lumbar puncture on wedesday, we all agreed that the Consultant we have been dealing with (the sales man who covers Australia) is quite useless and does not follow through on any details with the families.
Meg was out of theatre in about 20 mins and was aready waking up as they were wheeling her out, we went up to recovery with her and she was smiling as i was singing her favorite songs. Once fully awake she devoured nearly a while bottle of milk and within an hour we were being taken off to see the consultant about what exercises we should be doing with Meg to increase the stimulation in the areas of the brain that will aid the stem cells to find the right spots to repair.
Funnily enough it all centered around oral stimulation - it is stuff we are doing already, with just a few refinements we are on the right track which is heartening.
Home after the consult and Meg slept for 2 hours, we had a lovely walk and did some shopping, Megs back where the stem cell extraction took place is fine, you can hardly see the punctures and asolutely no bruising.
So tomorrow is the MRI and unfortunately another General anasthetic, we will see the Dr post this and discuss our final decission about which procedure to go with.
Stay tuned for the next episode
Kate
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