Meg - 3 + months on

Well it's been a while since I have updated Meg's blog. We have just finished school holidays and we begin our weekly trips to Melbourne tomorrow.
Meg has been extreemly well this winter, with only a sniffle early last month. This seems a common theme - I have spoken to a number of parents who's kids have undergone Stem Cell therapy. Immune systems seem to be boosted by the therapy with many parents stating that since S/C therapy they have not had a winter with frequent trips to hospital due to the various colds / flu / pneumonia. One parent has a 13 yo son - this is the first winter they have not had to take him to hospital.

All the gains we have seen since Meg's stem cell therapy have continued to advance in the last 3 months or so.
She is now making much more eye contact with us and the people around her.
Her communication skills are also improving with her head nodding and shaking (Yes / No) is very clear and we use her communication book to give her some say in what happens in her life.
Her hands remain less tight and she is using her hands a little more.

Another change which we had not mentioned previously was Megs leg length. Meg has for some time had quite a signifigant difference in her leg length, cause by the tightness in her abductor muscles pulling her left hip up making her left leg seem shorter than her right. Since the stem cell therapy and continuing Bowen Therapy her leg length has equalized.

We are due for another hip X-ray next month with the orthopaedic surgeon wanting to operate on Meg, our fingers are crossed that this may make a difference and Meg will not require surgery at this stage.

Other differences noticed,
- Meg holds her self up better - more tone in her trunk & is using her hands to support herself off your body when carrying.
- she is making many more noises and responding to games played and pretend play with noises.

On a sad note Meg's dad and I have separated.
It is a big journey for anyone having a disabled child - it is a steep learning curve and changes you irrevocably, unfortunately this has an enormous impact on relationships and from what I have read only 30% of relationships survive the ordeal.
I hope Jason will remain a big part of Meg's life and continue to offer her the support she needs.

Meg, Tom & I would like to thank our dear friends for your support over this emotional time, the people who have dropped over a few meals and Bev Miller for organising a donation of firewood for us to keep warm this winter, it is all very much appreciated. Even just the few who've dropped in for a cuppa and a chat, it means alot, thanks so much.

Kate





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