We were happy to make the trip to Melbourne yesterday to finally meet the 2 professors who helped us online wean Meg off her feeding tube!!
Prof Margeuritte Dunitz -Sheer & Prof Peter Sheer from University hospital Graz Austria who have spent the last 30 years or so dedicating their life to helping children with tube feeding dependancy.
About 50 families were there all with tube dependant children - a great turn up and we hope may show the powers that be that this problem is bigger than the medical profession likes to admit.
http://www.notube.at/ for more information on the Graz tube weaning clinic
Here are some pics of Meg enjoying the play picnic at the Parents session.
Anyone reading this who needs some support with tube weaning or the like can also get amazing support from a parent support site - http://www.tubefedkids.ning.com/ - there are hundreds of parents on here going through it and who have been through it who can offer support and advice.
Kate & Meg
To Donate to MegAid Bendigo BankMegAid TrustBSB 633000Acct 137281846
No comments:
Post a Comment